?

Log in

No account? Create an account
juin 2019   01 02 03 04 05 06 07 08 09 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30
* - galaxy

Chronic Fatigue Syndrome

Posted on 2005.06.05 at 09:06
First - apologies if I posted the comment about credit cards in the wrong friend's jnl. I am Mr. Mistake - you should know that about me. I can't find my Visa bank card or my latest car insurance bill either...

However, I am up early, and I finally feel pretty good.

Stress, exertion, change in sleep patterns - these all predispose for CFS relapses. Lately, it's been so bad, my eyes started sinking in - just like in the old days. Completely gross - but other people tell me they don't notice it - although I know their subconsciouses do, and they treat me like I'm a deranged psychopath when it happens. Which of course, is completely injurious to my already splayed nerves.

Why do my eyes sink in? No one knows. Although, I have heard of this symptom in one or two other people w/ CFS (which, again, isn't contageous, and which ISN'T a mental illness, and ISN'T depression, and ISN'T hypochondria).

Pause... (who is sashaisdead?)

There is also a condition called Chiarra's Syndrome - or something like that - where the brain swells, and tends to slip out from under the back of the skull. This is often associated w/ CFS, or possibly misdiagnosed as such. Surgery is done, and shunts are placed in, but often unsuccessfully. I talked to a girl who had this condition, and it is possible I have had it too.

But I believe during a CFS relapse, I lose a bit of neuron sheeth fat, and possibly some other stuff - temporarilly. Esp. behind the eyes. And this is why my eyes sink. After a relapse, if I eat foods w/ saturated fat, like chocolate, (and also protein), and sleep, then the eyes start puffing out again - and I look like my wonderful self - and feel that way too. One would think that Omega fatty acids would be the cure here, but they're not - although I still believe I need them too, just generally.

Dehydration is also a major problem during relapses, and I believe the main thing I lose in the brain is water. When I dehydrate, I look 20 years older.

I'm not as sick as I used to be, but it's still tough. And a major problem is that I can be physically active and talkative even when I'm somewhat fatigued. And people think I'm not sick at all. The problem is that this activity adds to my general stress load, and I can drop like a stone the next day, confining myself to my room, where no one sees me, and no one sees the evidence of my illness. The social difficulties w/ CFS are very taxing. One of the BIGGEST problems. Because of this, and also because a condition somewhat similar to depression can follow from the illness itself, CFS has the highest suicide rate of any major chronic illness.

I look great. My muscles bulk up really easilly. And I can do some serious heavy-lifting, etc. It's very tough looking great yet being ill..

A lot of people have CFS, and yet manage to make a life for themselves. And yet they are confined to their homes, like the author of "Seabiscuit". At the Sydney Olympics, the US women's track (or relay?) contestant had CFS - yet she was prepared to compete. However, when she was harassed at her apartment, the stress evoked a relapse, and she had to return to the US, completely unable to run.

It's Kafkaesque.

Comments:


sara
saraara at 2005-06-05 21:57 (UTC) (Lien)
It's very tough looking great yet being ill..

that just made me laugh for some reason. i see you looking in the mirror, kissing your biceps saying "this is such a waste" hahaha
where hypotheses come to die
madman101 at 2005-06-05 22:04 (UTC) (Lien)
Precisely.

::boo hoo!::
Previous Entry  Next Entry